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Medicaid & the disability community: One family’s journey

Stock photo of mother and child
Stock photo of mother and child

Georgia’s Medicaid health insurance system covers many different Georgians, including those with disabilities. The coverage provided to people with disabilities offers much-needed support to individuals and families that might otherwise fall short of addressing their health care needs.

While Medicaid has been a lifeline for some, a full expansion of Medicaid would bring additional funding to the state and strengthen existing programs. For every dollar Georgia would spend to close the coverage gap, Georgia would receive up to $9 in federal funding. The recently passed American Rescue Plan added to the financial incentives available under Medicaid expansion; under the new federal law, Georgia could attract $1.3-$2 Billion to cover the costs of expansion and offset state spending on other priorities.

This additional funding could benefit Georgians who need Home and Community-Based Services (HCBS) Medicaid waivers. HCBS waivers help people with disabilities get the health and support services they need so they can live independently in their communities, rather than in nursing homes or long-term care facilities. Currently, more than 6000 Georgians sit on a waiting list for one of these waivers.  The additional funding that Georgia could earn under Medicaid expansion could reduce or possibly eliminate the HCBS waiver waiting list altogether.

Below is a first-hand account from a Georgia mother, whose 9-year-old daughter is covered by Medicaid. Her daughter was diagnosed with Ataxic Cerebral Palsy at 18 months. Since her diagnosis, the two have navigated challenging care and coverage issues. Their experiences highlight a number of the policy and advocacy issues that consumers contact GHF about regularly: Medicaid, Medicaid expansion, difficulty finding health care providers, Georgia’s public health system.

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GHF welcomes new Story Collection Coordinator

GHF is excited to welcome Lois Hairston as the organization’s new Story Collection Coordinator. In this role, Lois will work to collect, develop, and share the stories of Georgia individuals and families as part of GHF’s Close the Gap initiative.

Lois is a graduate of Old Dominion in Virginia, where this past year, she served as the Communication and Membership Chair for the University’s Black Alumni Chapter. Her professional background includes experience with marketing agencies in Virginia and the District of Columbia, where she managed direct marketing campaigns for clients such as the Democratic Governors Association and the HealthWell Foundation. Recently, in her role as Communications Manager for Youth Entrepreneurs, Lois managed the creation of branded content and acted as the public relations liaison for the national nonprofit.

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Share Your Coverage Story!

Recently released HHS numbers show that health insurance enrollment in Georgia and across the country is going strong. The Affordable Care Act is what has made these coverage gains possible, yet Congress has prioritized repealing this landmark legislation without clarifying what would replace it. We need your stories and your voice to ensure our policymakers understand the consequences of repealing the law. Please consider submitting your story, or the stories of the people that you serve, of how the ACA has benefited you. Whether it’s being able to afford coverage through the availability of tax credits, not being denied coverage due to a pre-existing condition, or being able to stay on a parent’s plan until age 26 – we need to hear from you!


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GHF In The News

Sep 13, 2021
Georgia Eyes New Medicaid Contract. But How Is the State Managing Managed Care?
Rebecca Grapevine and Andy Miller

“Medicaid members are best served when they have ready access to providers, insurers are eager to resolve their health care needs, and policymakers exercise strong oversight to ensure members’ health…

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